Patient and public involvement in research reporting
BMJ 2025; 389 doi: https://doi.org/10.1136/bmj.r647 (Published 10 April 2025) Cite this as: BMJ 2025;389:r647Linked Research
Evolution of reported patient and public involvement over time in randomised controlled trials in major medical journals and in their protocols: meta-epidemiological evaluation
- Sophie Staniszewska
, professor1,
- Sally Hopewell, professor2,
- Dawn P Richards, patient author3,
- Runcie C W Chidebe, patient advocate4 5
- 1Warwick Applied Health, Warwick Medical School, University of Warwick, Coventry CV4 7AL, UK
- 2Oxford Clinical Trials Research Unit, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University of Oxford, Oxford, UK
- 3Patient author, Clinical Trials Ontario, Toronto, ON M5G 1M1, Canada
- 4Patient author, Project PINK BLUE - Health & Psychological Trust Centre, Utako, Abuja, Nigeria
- 5Patient author, Department of Sociology and Gerontology and Scripps Gerontology Center, Miami University, Oxford, OH, USA
- Correspondence to: S Staniszewska Sophie.Staniszewska{at}warwick.ac.uk
Patient and public involvement (PPI) has become a key part of health and social care research in many countries with a focus on working with or by patients rather than to, about, or for them, aiming to coproduce knowledge that is relevant, appropriate, and acceptable for patients.12 Patient and public contributors can and should be included at all stages of research, including identifying key questions, designing, recruiting, selecting outcomes, and implementing findings.1
Patient involvement in a study should be reported within a paper to ensure that this knowledge contributes to building the PPI evidence base for practice. While reporting PPI might seem obvious, the reporting of PPI in research remains more elusive than we might expect. Past studies have identified poor and inconsistent reporting,34 which resulted in development of the GRIPP2 reporting guidance specifically for PPI.56 GRIPP2 is supported by journals that request authors to report PPI, including The BMJ and BMC Research Involvement …
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