Dear Editor,
In your obituary of Jeremy Bradshaw-Smith (March 2025) you rightly report he is thought to have achieved a world first when he gave a patient a computer printed prescription.
However, the world first of having all the registered patients in a general practice with a computerised medical record was achieved a few years earlier by John Preece (1928-2021), then a single-handed GP, in the Whipton Practice in Exeter. He entered all medical records himself and first authored an academic publication reporting it. (Preece J et al. 1971).
References
Gulland A. Jeremy Bradshaw-Smith. Obituary. BMJ 2024; 387 :q 2702
Preece JF, Gillings DB, Lippmann ED et al. An on-line record maintenance and retrieval system in general practice. Int J Biomed Comput 1970; 1(4) :329-37
Competing interests: No competing interests
Re: Diagnosis and management of complex post-traumatic stress disorder (C-PTSD)
Dear Editor,
A key population group omitted from this article are the parent carers of children with complex medical needs. Multifaceted components to their lives and context not only heighten their risk of complex PTSD but reduce their potential to seek support. Parent carers for life-limited and medically complex children are repeatedly exposure to witnessing their child face life threatening complications and frequent encounters with an often-traumatic health and social care systems.
A recent working group noted that parent carers face the inescapable reality of repetitive small ‘t’ trauma when caring for their disabled children and can, as a result, experience past, present and predicted future trauma as they process life threatening events, face complicated and challenging systems of care as well as fearing an unknown future (Griffin et al, 2023).
Not only the parent carers, but children with profound and multiple learning disabilities face increased risk of medicalised trauma by undergoing invasive often painful medical treatments without the ability to cognitively understand what is happening, or the communication skills to express feelings, fears or needs. Both children and their parents are then further subjected to Systems Generated Trauma which not only observes and measures the child’s development and behaviours but judges and can contribute to disempowering the parent carers’ authority.
Caring for a disabled or serious ill child is a highly emotive, challenging and often relentless experience of love, devotion, isolation and powerlessness. Recent research shows the mental health impact of being a parent carer leads to an increased risk of thoughts of suicide with 4 in 10 experiencing suicidal thoughts and behaviours while caring for a disabled or chronically ill child (O’Dwyer et al, 2024). Yet without parent carers being a data collection point, the actual levels are difficult to measure.
Parent carers also face a level of fear that expressing suicidal thoughts might lead to safeguarding concerns and rather than lead to additional support, result in additional scrutiny. Key for this population is the additional complexity that healthcare systems, and the clinicians who work within them, have been identified as potential sources of Systems Generated Trauma (Clements, 2024).
It is vital clinicians not only identify this high-risk population who they frequently encounter but also reflect on the ways their personal interactions and service delivery might be contributing to the parent carer experience of complex PTSD. Their actions might not only identify those at risk but enable a non-judgemental, safe and supportive space for parent carers to express their trauma and seek help.
1 Griffin, J. et al, (2023) Difficult parent or traumatised parent. British association of Counselling and Psychotherapy Children Young People and Families, December 2023
2 O’Dwyer, S. et al, (2024). Suicidal Thoughts and Behaviors in Parents Caring for Children with Disabilities and Long-Term Illnesses. Archives of Suicide Research, 1–18. https://doi.org/10.1080/13811118.2024.2363230
3 Luke Clements. Systems Generated Trauma. 15 June 2024.
Competing interests: No competing interests